Today Lily and Claire turn 3 weeks old, and yesterday they turned 31 gestational weeks. We feel blessed to have three weeks behind us, and look forward to hopefully the next few weeks being a bit more steady. Today they have started weaning the girls off their oxygen. It's a slow process, but they are now on one liter of oxygen instead of two. So far so good.
Lily is still eating at 7 ml/hr and all of her blood work has come back normal. Claire is at 6 ml/hr and had fortifiers added in, but has since had it taken away. The fortifiers add extra calories but also has sodium in it. Since her sodium is on the high side, they decided to cut that out of her diet. They are keeping her on protein though. Her creatinine is 1.4 which is still high, but considerably lower than it was before. The doctors seem pleased with it continuing to drop. Yesterday Claire had a blood transfusion because of low red blood cells. The neonatologist said that it isn't unexpected and he's actually surprised that she made it so long without one (since they draw blood on her so often). Everything went smoothly with her transfusion.
Both girls see occupational therapy every day, and are now also seeing speech therapy. The speech therapist said that both girls take their pacifier and can suck well on it. This is great news regarding when they can begin taking a bottle or breast feeding. She said we can begin around 32 or 33 weeks but they would like to have them off their high flow nasal cannula first. Overall, things are definitely moving in the right direction.
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